AfPA’s Survey Hub

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AfPA’s Survey Hub is a repository of attitudinal research on patient, physician and public opinions regarding healthcare access. As policymakers seek to balance costs, access and efficacy, AfPA Survey Hub provides key insights into the opinions and behaviors of healthcare consumers and providers.

This educational resource features publicly available survey research, focus group findings, online polls and commissioned studies.

Research!America Survey On Public Perception Of Clinical Trials

Research!America, August, 2017

Key Findings:

  • 47% strongly agree health care professionals should discuss clinical trials with their patients diagnosed with a disease
  • 48% somewhat agree that taking part in clinical trials is as valuable to our health care system as giving blood

 

Survey Finds Low Awareness About Clinical Trials

SubjectWell, August, 2017

Key Findings:

  • Half (50%) of all respondents were not aware of clinical trials
  •  Only 4% have ever participated in a clinical trial
  • 49% hold neutral perceptions of clinical trials 

 

Survey Results Show Eighty Percent of Rheumatoid Arthritis Patients Report Life-Altering Pain Daily or Multiple Times a Week, Despite Treatment

Honestly RA, February, 2017

Key Findings:

  • 80 percent of rheumatoid arthritis patients experience pain daily or multiple times per week
  • 64 percent say it keeps them away from daily activities and celebrations, even after treatment
  • Patients have tried an average of more than four prescription medications in the last five years

Survey Finds CDC Opioid Guidelines Hurting Patients

Pain News Network, March, 2017

Key Findings:

  • 90% of surveyed said the CDC guidelines have not improved the quality of pain care
  • 84% of surveyed said the CDC guidelines have not been successful in reducing opioid abuse and overdoses

Pew: Vast Majority of Americans Say Benefits of Childhood Vaccines Outweigh Risks

Pew Research Center, February, 2017

Key Findings:

  • 82% of U.S. adults say healthy children should be required to be vaccinated for measles, mumps and rubella to attend school because of the potential risk to others 
  • 73% of U.S. adults say medical scientists should have a major role in making decisions about policy issues related to childhood vaccines. 

American Medical Association Prior Authorization Survey

American Medical Association, December, 2016

Key Findings:

  • 75% of physicians said prior authorization requests were a “high” or “extremely high” burden on their practices 
  • 90% of the survey respondents reported the prior authorization process delayed necessary care for patients. 

 

Opioid prescription changes

SERMO for the Boston Globe, December, 2016

Key Findings:

  • Physician survey shows fewer opioids being prescribed
  • 38% of family medicine physicians say patients have been hurt by the reduction in prescriptions

 

New Survey by Protect My Doctor and Me explores public opinion on changes to Medicare

Morning Consult, November, 2016

Key Findings:

  • 8 in 10 voters (84%) trust doctors the most to make decisions about treatments and medicines
  • 3 in 4 (75%) say “The government needs to find ways to keep the promise and integrity of Medicare without cuts to the program” comes closest to their view
  • Majorities of voters oppose controlling Medicare spending by limiting access to care or to certain medicines and treatments

Physician Survey About Biosimilar Naming Finds Strong Support for Meaningful Suffixes

Biologics Prescribers Collaborative, November, 2016

Key Findings:

  • 80 percent of physicians preferred a meaningful, distinguishable suffix
  • More than half of physicians, 53 percent, said they would feel more confident prescribing a biosimilar if the product contained a meaningful suffix
  • More than 2/3 of physicians were also interested in learning more about biosimilar clinical trial data

Deloitte’s 2016 Consumer Priorities in Health Care Survey – Health plans: What matters most to the health care consumer?

Deloitte, October, 2016

Key Finding:

  • Most important cluster: Personalization expected via providers Our study revealed that personalized experiences with providers are the most important interactions that consumers have with the health care ecosystem. Consumers want to be heard, understood, and given clear directions through a personalized health care experience. Providers are best positioned to deliver on these desires, and interactions that fit into this cluster ranked almost three times as high as any other set of interactions in our study.

Patients, Their Families Concerned About Health Care

Partnership to Fight Chronic Disease, September, 2016

Key Findings:

  • 77% report that they or someone they know has had trouble using their health insurance in the past year
  • 73% say it’s very important to have more transparency when it comes to costs at the hospital
  • 43% say costs have increased in the past year
  • 27% say health insurance premiums are costs that impacted their family’s budget the most

Vaccine Delays, Refusals, and Patient Dismissals: A Survey of Pediatricians

Pediatrics, August, 2016

Key Findings:

  • The proportion of pediatricians reporting parental vaccine refusals increased from 74.5% in 2006 to 87.0% in 2013
  • Pediatricians perceive that parents are increasingly refusing vaccinations because parents believe they are unnecessary (63.4% in 2006 vs 73.1% in 2013; P = .002)
  • A total of 75.0% of pediatricians reported that parents delay vaccines because of concern about discomfort, and 72.5% indicated that they delay because of concern for immune system burden

Survey finds majority would participate in Precision Medicine Initiative study

PLOS ONE, August, 2016

Key Findings:

  • 79% of respondents supported the proposed study
  • 54% said they would definitely or probably participate if asked
  • The opportunity to learn health information about one’s self from the study appears to be a strong motivation to participate

Medicare Today Survey explores Medicare Part D recipients’ opinions of their prescription drug coverage

Medicare Today, July, 2016

Key Findings:

  • 88 percent of voters say they are satisfied with their prescription drug coverage
  • 84 percent of voters say it was important to them to have a variety of plans to choose from

 

Kaiser Health Tracking Poll: July 2016

Kaiser Family Foundation, July 15, 2016

Key Findings:

  • 85 percent of Republican voters and 93 percent of Democratic voters say their own political party best represents their views on health care.
  • 38 percent surveyed said health care costs are the top health issue

Deloitte Survey Finds Low Physician Awareness and Many Needed Changes by Physicians for Medicare’s MACRA Program

Deloitte, July 13, 2016

Key Findings:

  • 50% of non-pediatric physicians surveyed have never heard of MACRA (Medicare Access and CHIP Reauthorization Act of 2015)
  • 32% of physicians surveyed only recognize the name MACRA
  • Half of physicians surveyed are unaware of significant payment changes that begin January 2017

 

 

In A Politically Polarized Year, Poll Finds Wide Agreement Among Voters On One Healthcare Agenda

Galen Institute and Center Forward, June 23, 2016

Key Findings:

  • Nearly two-thirds of voters (65%) want the next president to prioritize medical discovery during his/her first 100 days in office
  • Overwhelming support for ongoing access to new treatments and cures through Medicare and private health plans, for modernizing the Food and Drug Administration, and facilitating new public-private partnerships

 

Doctors far from ready for value-based care system, survey shows

Benefits Pro, June 15, 2016

Key Findings:

  • In a survey of 450 physicians and health care executives conducted by Quest Diagnostics of Madison, New Jersey, and Inovalon of Bowie, Maryland, 74 percent say the quality measures are too complex, suggesting they often don’t know what exactly is expected of them.
  • While just over half (57 percent) of the 150 health care executives said they favored a value-based system, only 33 percent of the 300 physicians polled agreed.

 

2016 CancerCare Patient Access and Engagement Report

CancerCare, May 11, 2016

Key Findings:

  • Only about one-half of the respondents reported understanding their health insurance coverage for their cancer care “completely” or “very well.”
  • Many respondents used care-altering strategies to reduce costs. Twenty-nine percent said they skipped doctors’ appointments; 38% postponed or did not fill drug prescriptions while 34% skipped doses; 30% ordered medications online from sources outside the U.S.; and 31% cut oral medications in half.

 

Survey of Non-Group Health Insurance Enrollees, Wave 3

Kaiser Family Foundation, May 20, 2016

Key Findings:

  • About 40 percent of people who’ve purchased health insurance plans through a state or federal marketplace say they’re dissatisfied with their premiums.
  • 46 percent say they’re unhappy with their deductibles.

Americans Support Patient-Centered Solutions, Oppose Government Determining Value

Partnership to Improve Patient Care, April 12, 2016

Key Findings:

  • 8 in 10 say that doctors and patients should be able to decide the best course of treatment without government interference.
  • 9 in 10 voters agree that health care decisions should be made between doctors and patients.
  • 86 percent of voters think it is important to maintain the current Medicare safeguard that prohibits the government from using cost-effectiveness in making coverage or payment decisions because it may discriminate against seniors and people with disabilities.

 

Kaiser Health Tracking Poll March 2016

Kaiser, March 2016

Key Findings:

  • Nearly half of the uninsured (48 percent) polled say they have tried to get coverage but cost was prohibitive.

 

Patients’ Perspectives on Health Care in the United States

Survey from National Public Radio, the Robert Wood Johnson Foundation, and the Harvard T.H. Chan School of Public Health, February 2016

Key Findings:

  • 42% of respondents say they spent all or most of their personal savings on medical bills
  • 52% say healthcare costs are a “major problem”

 

New Kaiser/New York Times Survey Finds One in Five Working-Age Americans With Health Insurance Report Problems Paying Medical Bills

Kaiser/New York Times, January 5, 2016

Key Findings:

  • Among the insured with medical bill problems, 63% report using up most or all their savings and 42% took on an extra job or worked more hours
  • 62 percent of those who had medical bill problems say the bills were incurred by someone who had health coverage at the time (most often through an employer)
  • Among the insured with problem medical bills, 26% say they received unexpected claim denials

 

More Americans Say Health Premiums Went Up Over Past Year

Gallup Poll Social Series, December 4, 2015

Key Findings:

  • 36% who pay premiums say costs went up “a lot” — a new high
  • Fewer insured Americans say employers pay full cost

 

Voters Trust Physicians, Wary of Insurance Companies, Worried about Costs but Value Access

Alliance for Patient Access, December 2015

Key Findings:

  • Survey respondents trust their physicians to decide effective course of treatment
  • Survey respondents are wary of insurance companies and health plans directing care or limiting treatment options
  • While worried about costs, survey respondents value access to effective therapies and medical innovations

Cost Still Delays Healthcare for About One in Three in U.S.

Gallup Poll Social Series, November 2015

Key Findings:

  • Figure has not fallen since ACA reforms
  • Americans more likely to put off care for serious condition
  • 31 percent of those surveyed said they or a family member have delayed treatment due to cost

What you always wanted to know about patients

Survey for World Arthritis Day, October 2015

Key Findings:

  • 82% of those surveyed said patient organizations should focus on spreading information to patients 
  • 62% of those surveyed said patient organizations are needed to advocate for policy with lawmakers

Pharmacists Support Distinguishable Names for Biosimilars & Transparent Labeling

Alliance for Safe Biologic Medicines, October 2015

Key Findings:

  • 68% of pharmacists say “Yes,” biological and biosimilar medicines should have distinct non-proprietary names 
  • 81% say prescribing information or “label” should indicate whether a medication is a biosimilar
  • 88% say prescribing information should indicate if the biosimilar is interchangeable with its biological reference product 
  • 76% say prescribing information should explain for which approved uses a medication was studied and for which it was extrapolated an indication from its originator product
  • 69% say data in the prescribing information should be identified as originating from studies on the biosimilar or on the biologic

Patients Describe Cancer Care as Expensive and Hard to Access

Cancer Support Community, March 2015

Key Findings:

  • 22% of patients reported delays in accessing care
  • 47% reported paying more for health care in the last 12 months, which they attributed to:
    • Insurance premiums (61%)
    • Deductibles (46%)
    • Co-pays (45%)
  • 37% reported being concerned about bankrupting their families

One in Four Patients Initially Denied Access to Hepatitis C Cures

Yale University School of Medicine, August 2015

Key Findings:

  • Of patients prescribed sofosbuvir/ledipasvir to cure them of hepatitis C:
    • 77% received initial approval; About 23% received initial rejection
    • Nearly 14% of those initially rejected did receive treatment through the appeals process
    • Patients had to wait an average of 26 days for a final approval or rejection decision on coverage

 

Patients Consider Non-Opioid Therapies Ineffective

Pain News Network & The Power of Pain Foundation, October 2015

Key Findings:

  • 95% patients agree that new CDC guidelines discriminate against pain patients
  • 1/3 patients said exercise, weight loss, or cognitive behavioral therapy had helped relieve their pain
  • 2/3 patients said exercise, weight loss, or cognitive behavioral therapy “did not help at all”
  • Only 7% patients said their insurance covered most or all of alternative therapies such as exercise, weight loss, or cognitive behavioral therapy

 

Patients with Lower Incomes Less Likely to Participate in Clinical Trials

The JAMA Network Journals, October 2015

Key Findings:

  • Patients with annual household income below $50,000 had 32 percent lower odds of trial participation than higher income patients
  • Only 11% of patients with household incomes below $20,000 participated in clinical trials

Severe Asthma Disrupts Patients’ Everyday Lives

Boston Scientific, September 2015

Key Findings:

  • 32% patients reported that their severe asthma negatively affected their social life
  • 23% patients reported it affected their work life
  • 18% patients reported it affected their family life

 

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