Tourette Syndrome Awareness Month: A Time to Stop the Stigma

Many people think they know Tourette syndrome.  It’s the person who blurts out foul words at inopportune times, like what you see on sitcoms or

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Cystic Fibrosis Patients Assert Health Care Rights

Certain elements are critical to the health care that patients with cystic fibrosis need.  The Cystic Fibrosis Engagement Network has identified those elements in its

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ICER Report Offers Little for Women with Endometriosis

Only one-fourth of the 6 million women with endometriosis could be treated with a new GnRH antagonist and still meet the Institute for Clinical and

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Access, Disparities Issues Dominate Cardiovascular Health Policy Summit

A massive stroke marked a serious change in the weather for Mark McEwen, whose familiar face brought viewers the weather forecast on the 1990s’ “CBS

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Drug Approval Signals New Options for Stroke, Heart Attack Survivors in Europe

Heart patients in Europe have something to celebrate.   This week, the European Commission approved a groundbreaking new drug, evolocumab, to prevent heart attack and

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Where President Trump, U.S. Senators & Physicians Align

New research suggests that President Donald Trump, U.S. senators and the country’s physicians may agree on at least one thing: the federal 340B drug pricing

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Huntington’s Disease Patients Aim for Parity

This month, patients with Huntington’s disease are asking for what worked for patients with ALS and other debilitating diseases–parity to accessing Medicare benefits.  The request

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How Policymakers Can Redefine Pain Management

More than 42,000 Americans died from an opioid overdose in 2016.  Meanwhile, millions of other Americans suffer from chronic pain. The situation poses a difficult

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In Europe, Advocates Emphasize Role of Patient Voice

Patient advocacy organizations know the power of the patient voice when it comes to accessing medicine. Just consider Arthritis Ireland.  As highlighted during a recent

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Clinical Trials Lack Seniors, Newborns

What do newborns and senior citizens have in common?  Neither are showing up for clinical trials. And that’s a problem, says the Coalition for Clinical

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