Obesity in Rural America
Obesity is a chronic disease that impacts millions of Americans, but it is more prevalent in rural populations. Approximately 48% of adults in non-metropolitan areas live with obesity. Improving access to obesity care in rural areas will improve quality of life for many Americans. Read One-Pager >
Friedreich’s Ataxia: A Rare Condition Facing Common Access Challenges
Friedreich’s ataxia (FA) is a rare progressive neurological condition that usually presents in childhood with balance and gait issues but ultimately results in life-altering fatigue, loss of mobility, and for many, multi-system failure and premature death due to cardiomyopathy. Read paper >>
How Alternative Funding Programs Harm Rare Disease Patients
People with rare diseases deserve timely access to care for their condition. But alternative funding programs are a new threat to rare disease patients’ access. Read One-Pager >
Vaccines for Every Age
Immunizing as you age benefits adults and their communities. Read One-Pager >
How Alternative Funding Programs Harm Cancer Patients
Patients with cancer deserve swift care that fully meets their needs. But increasingly, alternative funding programs threaten access to cancer treatments. Read One-Pager >
The Right Care for Rare: A Policy Roadmap to Support Rare Disease Patients
Rare disease patients need a clearer path to diagnosis, more treatments and swifter access to timely care. Policies must acknowledge these needs and encourage innovative treatments for people living with rare diseases. Read Paper
Breath of Fresh Care: Improving Asthma Patients’ Access to Innovative Treatments
Asthma and inhalers are closely intertwined in the minds of most Americans, even those without any personal connection to the widespread respiratory condition. Far fewer are aware of powerful new options that can significantly improve a patient’s relationship with their asthma. Read Physician’s Perspective
Obesity & Mental Health
Charles Nguyen, MD, discusses the connection between mental health and obesity in this Q&A. Read Interview
Elevating the Experiences of Schizophrenia Patients & Providers
Schizophrenia is a serious mental illness that affects roughly 2 million Americans. Patients may experience and interpret reality in an abnormal manner, leading to hallucinations, delusions and disordered thinking. The disease burdens patients and those around them physically, mentally, emotionally, financially and socially. Read Paper
At What Price? Medication Value, Patient Care & the Inflation Reduction Act
What happens when government agencies and health care providers disagree on the value of medical treatments?
