Cystic Fibrosis Group Defines Barriers to Treatment Access
Orphan drugs aren’t always reaching the patients who need them, and an advocacy group known as the Cystic Fibrosis Engagement Network has a few ideas as to why.
New Cystic Fibrosis Group Weighs in on Obamacare Revamp
As Congress continues to debate the future of the Affordable Care Act, a new advocacy group has a message for key legislators: protect cystic fibrosis patients as you reshape health care policy.
