The Rare Diseases Working Group is a network of policy-minded clinicians who advocate for patient-centered rare disease care. By participating in advocacy initiatives and the development of educational resources, working group members ensure that the clinician’s perspective informs policy discussions that impact health care for people living with a rare disease.
Within the Rare Diseases Working Group, AfPA hosts an Amyloidosis Initiative and IgG4-RD Initiative, which convene specialists to discuss specific barriers for these patient populations.
To learn more, or to join AfPA’s Rare Diseases Working Group, please email Isabelle Logsdon at [email protected].
