Rare Diseases Working Group

AfPA’s Rare Diseases Working Group is a network of policy-minded health care providers who advocate for patient-centered care.

By participating in advocacy initiatives and the development of educational resources, working group members ensure that the clinician’s perspective informs policy discussions that impact health care for people living with a rare disease.

To learn more, or to join AfPA’s Rare Diseases Working Group, please email info@allianceforpatientaccess.org.

Policy Resources

White Papers & Policy Briefs




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